Iron Man: “There’s the next mission, and nothing else.” When we first found out about Rhett’s heart, like Tony Stark (spoilers for Iron Man 1), you may say we were trapped in a cave feeling like there was no way … Continue reading →

Well, here we are. After nearly four years we are to the Heart Catheterization, which is the prerequisite for the big Fontan surgery coming up on July 15th. The letter we received from Cook Children’s summarizes it best. The purpose … Continue reading →

Hey everyone, with surgery quickly approaching in July we wanted to do another t-shirt fundraiser to help with the surgery cost as well as Amanda taking off of work  for 6-8 weeks to stay with Rhett during recovery. My sister … Continue reading →

So first, I’ll get the business portion out of the way and then we’ll get to the semi-professional debut of Rhett the model. Amanda is and has been so amazing at staying on top of the medical bills and scheduling … Continue reading →

I know, I know – It’s been 997 days since I last wrote an entry. Well, ladies and gentlemen the wait is over. To be honest, the writing process was so important to me as we were going through the … Continue reading →

Rhett will be turning 6 months old in less than two weeks! It’s hard to believe how fast time has flown by since bringing him home. Now that we have gotten the tube removed he has just been the happiest … Continue reading →

Rhett has really been excelling since coming home after the Glenn. He definitely suffered through the Glenn headaches but it seems to have subsided over the last week or so. He has really improved his eating and it was a … Continue reading →

Amanda and I finally made it to bed at 1:30 Sunday night and we had to be up at 4:45 to get ready to take Rhett to the hospital for his Glenn surgery. Amanda had to get ready and I … Continue reading →

Today we went to the hospital for Rhett’s pre-op visit. It was a really different feeling than the last time we went in for one of these. Obviously we are still worried, but it just felt a lot different having … Continue reading →

So Amanda was checking Rhett’s O2 levels today and noticed they were a little low so she got in touch with the nurse who reached out to the doctor and instructed us to go ahead and bring him to the … Continue reading →