sharing Rhett's heart with the world

July 10, 2019
by Jordan Spangler
1 Comment

The Endgame

Iron Man: “There’s the next mission, and nothing else.” When we first found out about Rhett’s heart, like Tony Stark (spoilers for Iron Man 1), you may say we were trapped in a cave feeling like there was no way … Continue reading

June 30, 2019
by Jordan Spangler
Comments Off on And now it begins.

And now it begins.

Well, here we are. After nearly four years we are to the Heart Catheterization, which is the prerequisite for the big Fontan surgery coming up on July 15th. The letter we received from Cook Children’s summarizes it best. The purpose … Continue reading

May 20, 2019
by Jordan Spangler
Comments Off on New T Shirts!

New T Shirts!

Hey everyone, with surgery quickly approaching in July we wanted to do another t-shirt fundraiser to help with the surgery cost as well as Amanda taking off of work  for 6-8 weeks to stay with Rhett during recovery. My sister … Continue reading

February 10, 2016
by Jordan Spangler
1 Comment

2/8/16 Check Up

Rhett has really been excelling since coming home after the Glenn. He definitely suffered through the Glenn headaches but it seems to have subsided over the last week or so. He has really improved his eating and it was a … Continue reading

December 22, 2015
by Jordan Spangler
Comments Off on Surprise Hospital Visit

Surprise Hospital Visit

So Amanda was checking Rhett’s O2 levels today and noticed they were a little low so she got in touch with the nurse who reached out to the doctor and instructed us to go ahead and bring him to the … Continue reading